Her doctor was great...we really liked her. She listened to both Haven and I. She had also read up on ROHHAD and knew about Haven. She had the latest info from Hopkins on Haven that we had sent up to her.
We did not receive chemo yesterday as we needed to get all of her labs done first. I am to receive a phone call today with the results and she will have her chemo on Friday this week at Dixie Regional Hospital. We got a prescription for numbing cream and for more DDAVP.