Sunday, January 24, 2010
Beautiful cake from the Make-A-Wish ladies and it was a Cold Stone cake - best I've ever eaten! Cup cakes made by Haven!
Haven and Grandma ready for the festivities!
Miss Lauren came to see Haven for her birthday. We haven't seen Lauren since going in to isolation last June so it was very nice to see her!
Time to open presents. All eyes on Miss Haven!
My friend Emily, left, came to see Haven for her birthday too. So very nice!
Haven and her beautiful new fuzzy purse!
We got Haven a Wii Fit for her birthday. I have to tell you - she has already used it and did 10 minutes on step aerobics and climbed 720 steps!!!! She did a total 30 minute workout!
Well it's time for bed. We have a car picking us up at 6:30am tomorrow to head to Florida! We are super excited. Love to all and thank you everyone for coming to her parties!
To see all of Haven's photos check out her FLICKR site!
Sandy and Lori came to bring her wish supplies and with it came a beautiful princess bear - complete with dress and high heels.
She also got a backpack full of goodies for the plane like art supplies (triangle crayons so they don't roll), snacks for the plane and markers that only write on the special book! Perfect!
Lori, Haven, Sandy and of course, Princess Bear. THANK YOU MAKE-A-WISH and THANK YOU LORI AND SANDY. We can't thank you enough! We are packed and ready for DISNEY!
The cup cakes were cute little pink heart shapes. They did a great job and the cup cakes were delicious!
Afterwards Grandma and Haven worked on their looming project. Grandma helped by showing Haven how to do it and then Haven took over! As you can see in the background Deez is happily napping!
Wednesday, January 20, 2010
Tuesday, January 19, 2010
Miss Haven...having fun at puppy school
Haven terrified of a 2 pound Chihuahua....I was almost embarrassed!!! What she forgot was to get the treats out of her hands before playing with dogs!
Lost 2 pounds
Grown 1/2 inch
Awesome stuff. Her blood pressure is remaining constant since Hi CY and her personality is amazing. The doctors are so happy with how she has changed. She even read Dr. Suess to her doctor. They can't believe how she has changed - she used to come in and stare at the ground and have a mad look. Now she is in there talking everyone's ear off and playing with the games and kids.
She was surprised with another immune test. She had to get a poke and wasn't happy about that. This is to test her immune system - we won't know anything for about 6 weeks. But it did leave her with a fever on Friday and Saturday.
I was off work early on Friday so it was a perfect to take her to visit her nurses at Dr. Cooper's. She hasn't been there in a long time - way before isolation this summer. We didn't get to see Dr. Cooper but all the girls were there.Nurse Dana got her a present and she spent about 2 - 3 hours immediately when we got home fashion designing clothes and shoes!
We also took a trip to her school and met the kindergarten teacher there. She has never been in a school and wanted to see what it was like. She got to see the desks and lockers and take a tour of the entire school. She had a lot of fun.
Tuesday, January 12, 2010
Haven started school back up last week. All of her grades were turned in to the school from last semester. She caught up with them very fast and the last two weeks were just review. She's reading Dr. Seuss books to me now and it's awesome.
She and Deez are like best friends now. If Haven sits down the dog is on her lap. Haven is finally getting used to her and loving her like crazy. She does get a bit jealous when Stryder comes over and Deez wants to play with him. She keeps a close eye on her.
Last weekend was Deez's first day of puppy school. She did a great job, however, she is the talkative one in class. All the other puppies sat there quietly....not Deez. She is as opinionated as the rest of us. She also went to the groomer afterwards for a small trim. I was barely able to get a picture with the bow in her hair before she pulled it out. Haven went with her to puppy school and learned a few tricks to teach her.
Grandpa Beard-off and Grandma Sing sent Haven an apple pealer for Christmas and it has been used over and over. She loves it - especially since she won't eat the skin of an apple!
Tuesday, January 5, 2010
Disney trip - Thank you to Johns Hopkins Riverside for adopting our family
Chemo Treatments: Cyclosporin, Rituxan, High Dose Cytoxin, High Dose Dexamethasone
Isolation: All Summer for High Dose Cytoxin and October for High Dose Dexamethasone
Surgeries: Eye surgery, Foot surgery, Central Line insertion, Central Line removal
Days spent in hospitals or doctors offices: 180
Thank you to everyone that helped us get through 2009. We hope for more fun and less hospitals in 2010!