Showing posts with label Johns Hopkins Riverside. Show all posts
Showing posts with label Johns Hopkins Riverside. Show all posts

Thursday, February 5, 2009

Monday Magic Kingdom/Epcot

Our last day was Monday. We hit Magic Kingdom and of course, Epcot. Haven started the day at MK because she HAD to get more autographs. I was starting to wonder who's child this was! PS: it rained ALL DAY - well actually right after the parade. It was a super cold rain and it thunderstormed part of the day.
Mickey and Minnie hanging out!

First stop - Mary Poppins. Haven has most of the Disney movies and she had to stop by and see her.
We were trying to hurry because there was a parade for the Pitsburgh Steelers happening only a few feet away.....we didn't want to be any part of the rowdiness!

Next we found where the Princesses were hiding! Here is Haven with Princess Aurora.

Haven with Cinderella.....it takes some time to get close to them again but she did very well.

Haven with Belle. All of the Princesses talked to her for quite a while. They asked her where her kingdom was and if she was the ruler. We laughed at this!!! Of course she is!

Haven heading down to Pixie Hollow......

Lady bug of Pixie Hollow

This is Silvermist - she is a fairie from the new Tinkerbell movie. I learned a lot about fairies from Haven on this trip. She waited quite a while to see the fairies but we just HAD to.

This is Irridessa from Tinkerbell. I haven't seen the movie but I know Haven wants me to watch it with her this weekend. Anytime she is coloring in her Tinkerbell book she watches to movie to make sure she gets all their clothing color right.

Miss Tinkerbell......I was excited to get Haven with Tinkerbell. She loves the movie and loves Tinkerbell.

Well...it's nap time again. We decided to take a boat to Epcot instead of the bus - mix it up a bit. Haven was asleep before we got on the boat and slept through the entire trip. She woke up when we made it to the monorail and headed in to Epcot one last time.

The rain finally stopped around 8pm and Haven and I grabbed our evening drinks. I had a Vanilla Latte and she had a "not so hot" hot chocolate! You have to ask for "not so hot" so kids can actually drink it. This was her favorite treat every night. Mine too!!!
We had the best time at Disney - Haven is already saying she has to go back every year that it was the best. THANK YOU RIVERSIDE and everyone that donated to Haven's Disney Trip.

Sunday, January 4, 2009

The New Year: 2009

We hope everyone had a wonderful holiday break. We definitely had a nice enjoyable much needed break. We're trying to get back in the swing of it now and get back to "real life" as much as possible.

We have so many people to thank for everything they have done for Haven this year. We want to thank everyone that has donated to her - everything is much appreciated. To everyone that sent her gifts and cards - THANK YOU. To Johns Hopkins Riverside - THANK YOU! Our Disney trip is right after Haven's birthday!

Over the break I RARELY looked at the computer (can you believe it) but here are a few donations that came in that we want to say THANKS!

Aunt Dottie and family - thank you for the donation
Rick Family - thank you for the donation
Stilwell Family - thank you for the donation
Shockey Family - thank you for the donation

Now back to your regularly scheduled program!
Love to all

Sunday, December 21, 2008

Johns Hopkins Riverside Christmas Party

WELL!!!! Remember a few months ago when I mentioned that JH Riverside wanted to adopt Haven for Christmas. Well they worked and worked on her Christmas Party and they OVERDID themselves!


We showed up at 5:00pm for what we thought would be a small gathering of the nurses and doctors with a couple gifts for Haven. WE WERE SURPRISED!!!


We had made plans to take Haven to Disney World for the first time ever last Summer but then she got really sick and we found out she has Cancer and we had to cancel our trip. Instead Haven has endured a year of doctors and tests and chemo. My ultimate wish ever was to take her to Disney and meet all the princess that she loves so much!
Johns Hopkins Riverside made that dream come true!!! Haven is going to Disney at the end of January. They raised enough money and gave us a fully paid package to Disney with flights, hotel, food, and more!!!! She is beyond excited. We have been looking up all the parks and everything. We're making sure she sees Magic Kingdom, Epcot, and MGM. Her sister Kendall is also going to fly out from California to be with us making it a complete family package!!!
I can't thank everyone enough for the donations to Haven and for the Disney World package. We have a gift planned for the office when we come back. Here are a few photos from the party. Haven has lived out of her "toy" basket every day since. I find it in her bed every morning!


THANK YOU

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...