So I was digging through my Shutterfly account and I guess I made this "site" in 2005. WHOA! Haven wasn't showing signs until 2006 so this is all before Cancer and ROHHAD.
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
enjoyed the pictures; some were good memories for me:)
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