Friday, April 25, 2008

Next week schedule

We have a busy beginning of the week.

Monday we will be at Johns Hopkins at 9am to meet with Anesthesia for her MRI. Her MRI will begin around 10:30am and will go for about 4 to 5 hours. If you remember, March 3rd they found a spot on the MRI scan (1 month after surgery) that looked like a tumor had started growing back. They took measurements and we discussed it all. Her doctors gave her 2 months before the next MRI to see if this has grown and if it is another Neuroblastoma tumor.

This Monday we will once again scan her from head to toe to check for any other cancer spots and to check this area in her abdomen again. I can only hope it has disappeared or not grown in 2 months. If it has grown or is still there we will have to make a decision of surgery or an additional type of chemo.

Tuesday we will be back in the hospital for another dose of Rituximab. So far she is handling this chemo pretty well. It wipes out all her energy for 2 days but so far we haven't experienced any more chest pains or coughing issues with it.

I will update more after the MRI results get back to us.

No comments:

Post a Comment

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...