Well if you type ROHHAD in to Google or Yahoo you most likely will not find much. There are a few articles and you will find information on Josh Wooten and possibly find Haven's blog site. Well, I work nightly and constantly on changing that and getting as much info out there as I can. So currently I'm working on a Wikipedia definition of ROHHAD. I'm learning as I go - since I've never done it before but it seems to be coming along great!