I'm doing a little "thing" I'll tell everyone about soon. Well, once we're up and ready with it. But Julie sent a couple photos to me over the break of Mason. These are Mason before and after ROHHAD.
Soon you will see what I'm working on. My only hope is that it actually starts to help people, doctors, moms, dads, and children with ROHHAD.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Monday, December 29, 2008
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
No comments:
Post a Comment