I received an email this morning from Haven's doctor - She will be admitted this Friday at noon to begin treatment.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
praying for you all....
ReplyDeleteDear Misty,
ReplyDeletePraying that the new treatments will be the answer to Haven's health issues. Please tell her that I said hello and that I'm sending more big hugs her way.
((((((((((((((((((MORE BIG HUGS))))))))))))))))))
With caring prayers,
Wylene