Miss Haven working on her puzzles. She did very well with all her medications.
Some how she has become a gamer. She loves playing the PS2. What is super cool is that the rooms have the computers that come out over the bed so they can relax and still have some fun.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Hi, Princess Haven!
ReplyDeletePraying that you're feeling better. You're going to be a champion at puzzles and games! You go girl!
Bye for now,
Wylene