Sorry to not post for a day or two - I can't remember really. But our baby girl woke this morning with some severe chest pains and very high blood pressure readings that have remained all day. Yesterday she slept A LOT. So we've been watching her. I'll get a few posts up in the next day or two.
I've also been keeping tabs on our friend Mason. He has been very very sick and his O2 has been dropping and CO2 has been rising. He has been in and out of the hospital. So if you could please send a note to him and think of him I'm very sure his mom and dad would appreciate it!
His web site is: MASON BYROM and you can leave him a little note there so his mommy can read it to him!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Dear Misty,
ReplyDeletePraying for sweet Haven to get better very soon.
With caring prayers,
Wylene