Click on any of the age ranges below to read about me!
Stage 1 - Pregnancy through Birth
Stage 2 - Birth through Age 1
Stage 3 - Age 1 through Age 2
Stage 4 - Age 2 through Age 3
Stage 5 - Age 3 through Age 4
Stage 6 - Age 4 through Age 5
Stage 7 - Age 5 through Age 6
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...