Haven and Hippo (little dude in her hand) wanted to tell everyone HI and thank you. She is super happy to be home and is ready to be a Princess Butterfly for Halloween.
PS: And she likes to say "Super Duper" all the time
:)
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Hi, Miss Haven!
ReplyDeleteWhat a beautiful princess butterfly you'll make for Halloween. You'll have to get your mom to take lots of pictures so we can see you!
Wishing you and your parents a wonderful upcoming weekend.
Bye for now.
With love and prayers,
Wylene
Hi Haven!
ReplyDeleteWe are so glad to hear you are home. We hope you feel well and wish you all the best! Can't wait to see your Halloween pictures. Jenna is going to be a cupcake...yummy.
You are always in our thoughts,
Lisa and Jenna Szandrocha