Let's make sure we're heard this year!!!!! I will add photos of Haven to their site soon!
To read about Rare Disease Day click HERE
Showing posts with label rare disease day 2001. Show all posts
Showing posts with label rare disease day 2001. Show all posts
Friday, December 3, 2010
Rare Disease Day 2011
Let's make sure we're heard this year!!!!! I will add photos of Haven to their site soon!
To read about Rare Disease Day click HERE
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
