I found some photos that we had taken but never posted.
Flushing the Hickman Line before the removal
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Havey I enjoyed the story on OWN about you strugles with ROHAD I wish it could have been an hour there was so much to tell.
ReplyDeleteI was surprised to see you at the end; great job and you looked beautiful.
A Candy