Well....Haven has a couple of nurses that are her ultimate favorite that she loves to hang out with when she is at the hospital. Nurse Katie is her favorite clinic nurse and she does the best port accessing. Then Nurse Claire is one of her night nurses on the inpatient 8th floor and then Nurse Hatel. This is the nurse that Haven kept calling in for hugs and talking.
Thank you Nurse Hatel for always taking such great care of our Haven.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
I'm glad she has a nurse she loves! That is SO important!
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