Sandy (left) and Lori (right) came to visit Miss Haven on Saturday morning from the Make-A-Wish foundation.
Our social workers and doctors at the hospital submitted paperwork for Haven for her wish and we received a call that she had been accepted. It was a great call but weird as well. You know you have to be terminally ill or seriously life-threatening to get a wish granter to come to your house and that is the sad part. But they make you feel special even when you just talk to them on the phone.
Lori hung out with Haven while Kris and I talked with Sandy (the boring medical side of it). I think Haven talked Lori's ear off for over an hour. Every once in a while I would tune in from across the room to see if Haven was talking and she was having a blast. She was telling stories and talking about her babies and what they like to do. Talking about TV shows. One point Kris and I both heard her tell Lori "I've never even had ice cream before"..........I couldn't believe it! Of course she's had ice cream - it may be sugar free and low cal and not in a cone but it's ice cream. She then corrected herself and said "well I've never had it in a cone!"
Haven discussed her wish of going to Disney with them and actually meeting the princesses and that she would like to play dress up with the princesses for her wish, she also discussed what her babies have wished for.
Disney has helped Make-A-Wish for so many years and there are so many great things they do for the kids I believe Haven will have some amazing memories. They have a special bungalow hotel for them, they pay for everything, and get us to the airport and back with no worries. I really hope she gets her wish.
We had lots of fun though. Haven was more outgoing and talkative than Kris or I could've ever imagined. Thanks to all her nurses and doctors for quizzing her all week to prepare! :)
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
(((((((((((((HUGSTOYOU))))))))))))))I really hope and pray Heaven will get Her wish.I love Disney,been there 3 times and would love to go back again.By the way,if your on Face Book,I would love to add you.
ReplyDeleteHi, Princess Haven!
ReplyDeleteCan't wait to see photos of you when you get to meet the other princesses. Hope you have a wonderful week.
Bye for now,
Wylene