Miss Haven is home from the hospital. She has been doing very well. Only minor things that we've been able to call the doctors about. Right now the only issues we've been having consistently is some major sleep walking issues. But our baby is home and happy.
Miss Lauren has gotten her flu shot and is set to come by to see Haven for the first time in about 5 months. They are going to do a little catch up visit.
This Friday she will go back to see her doctor and they will check her over completely. But right now she is doing very well and is happy to be home. Because she is the first to receive all this treatment for her condition we do not know when or if we will see results. We just have a lot of hope.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Welcome home, Miss Haven!
ReplyDeleteWhat wonderful news that you're home and feeling better.
Bye for now,
Wylene