Saturday, June 2, 2012

Lab work....IVIG

 On May 15th we headed back in to the hospital to get Haven's lab work done to see if we would need more IVIG any time soon.  Her normal IVIG schedule is every 8 weeks.

 She has always done her own flushing of the port and helping with all the needles.

This time was a much better visit and Haven did much better with Jason - her nurse.  We received a call from SLC the next day that Haven was amazingly up from below 100 to over 500 and has maintained it.  Her next scheduled IVIG would be May 29th.


Posted by at

1 comment:

  1. AnonymousJune 2, 2012 at 5:33 PM

    Haven is so brave, she could be a poster child for other children that are going through what she has for so many years

    ReplyDelete

Subscribe to: Post Comments (Atom)

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...

  • ROHHAD 15 Years Later
    Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
  • ROHHAD in Ireland
     I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...