Friday, April 13, 2012

ROHHAD in Scotland

This is an article written about one of our ROHHAD friends.  She lives in Scotland.  I wanted to share because there are so few of us and we need support and spreading awareness is the best way to do that!

 This is Daniella right after she was diagnosed with ROHHAD Syndrome.

Daniella's problems began at around the age of 2 1/2 - which she started aggressively looking for food.  Around Christmas 2010 Daniella fell seriously ill and couldn't walk.  After lots of testing they found she was going in to kidney failure and started dialysis....then after suffering heart failure her family feared they would lose her.

Doctors worked hard to find a diagnosis for her and she is doing much better today as she is monitored and cared for 24 hours a day.

We love you Daniella......

Please read Daniella's article in the The Scottish Sun newspaper. 

1 comment:

  1. In the first picture she looks so much like Haven! They could be twins!