Monday, November 23, 2009

Amazing....

Yes I'm still working on her book and going through photos. Amazing what ROHHAD took from her in a matter of months!


January 2006 with her sister Kendall

Easter 2006 - April

June 2006


September 2006

Posted by at
Labels:

1 comment:

Subscribe to: Post Comments (Atom)

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...

  • ROHHAD 15 Years Later
    Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
  • Endocrine Visit - June 20
    On June 20th we took Haven in to meet with her Endocrine doctor - he was the doctor that saved her life by finding her cancer and diagnosin...