We like this surgeon because he is "real". He tells it to us straight and will tell us when we're crazy. He has remained informed over the past 1 1/2 years on Haven and how she is doing. He told us this only marks an extremely rough road ahead for Haven. His sincerity and concern truly make us confident in doing any of Haven's surgeries.
He did warn us that he is now out of locations on her body to put in any more equipment. As he said - "we are out of room - no more ports!" Believe me, we don't want any more ports either.
He thanked us for allowing him to care for Haven and to be part of her life and he looks forward to the day when she is no longer at Hopkins.
Hopefully in about 4 months she will only need one more surgery to remove the Hickman line (Central Line) from her chest as the risk for infection is so high we don't want it in there.
Thank you Dr. Price and thank you to your dedication to medicine....without your extreme skills my baby wouldn't be in the best hands! We owe you a lot!
Here is Miss Haven and her latest smile. She has decided that this is the new smile. Really - it looks like she's just puckering her lips but this is the only way she would smile for the camera.
This was taken around 1pm. This is the first time ever that we were not able to remove the oxygen line from Haven. She was out of surgery at 9am. Every time the nurses would test her O2 levels by removing the line she would immediately drop in to the low 80's. So we had to keep this on until she remained stable at 92.
You can see by this picture where the incision is at her jugular on her left side and her newest port in her chest. She is extremely cautious of this new port and will not walk fast at all. I was able to sponge bathe her and get all the orange iodine off her body.
Around 3pm she was well enough to go to the playroom. Little did I know we needed to have the mask on if she leaves isolation and we had to have her room door shut tight! The nurse let me know immediately and she put the mask on Haven. So I won't forget that next time.
Haven loves to do puzzles so we worked on a Spongebob puzzle. During this time I also met with Haven's 3 new Oncologists. They work in the Inpatient Oncology wing. Dr. Jennifer, Dr. Farah, and Dr. Chen. We'll be working with them a lot during these next few weeks.