Sunday, June 28, 2009

Hi CY - Day 1

Well yesterday was very stressful so we were hoping for a less stressful day today.

Yesterday afternoon we received the news that Haven did not have Hepatitis B and was clear to start chemo. So the order was placed. By the time the pharmacy made it and cooked it she started around 10pm last night. Within the first 30 minutes she had a pretty strong headache.

They have kept her loaded up on Zofran today to help with the nausea and we have started her back on Colace as well.

She is on a constant drip of fluids which requires her pee to be tested every two hours.

Haven also had her EKG today which came back great and the doctors were all very happy with it.

We were also shown how we will clean her port. However, while she is in here the nurses will clean it. I think the removal of the tape will be the worst part of all of it.

This is the line of the new port. You can see the scar on the upper left which is where her other port is located. Her Central Line looks great. As usual, Dr. Price did an awesome job. The line gets pretty heavy with 3 lumens hanging from it with medication dripping in so we have rigged it up with a safety pin that is held on to her hospital gown.

We're very excited also because Nurse Clair has signed on as Haven's primary nurse. She will be Haven's main nurse throughout this entire treatment and Nurse Patel and Nurse Stephanie will be her night nurses. Haven really likes Nurse Clair.

I have not met Nurse Stephanie but I really like Nurse Patel as well. We had a few funny little incidents last night with Nurse Patel. When Haven went to sleep at 9pm Nurse Clair was still here and then around 9:30 Nurse Patel came in to do Haven's vitals. Well she freaked out and wouldn't let the nurse touch her because she didn't know who she was. She wanted Nurse Clair. It was funny. Kris and I had to go through the changing of the nurses with Haven 3 times before she let her do her blood pressure.

Then Kris told me around 4am they had to do a diaper change but Haven was sleep walking at the same time. There was quite a bit of fighting and the nurse told Clair all about it this morning. She said it was a huge sigh of relief when the diaper change was over!

Haven is doing as well as can be expected. The doctors are all very proud of her and how well she handles taking all her medications and working with the nurses. We met with 3 Oncologists today and all were happy with her numbers.

She will receive the 2nd round of Hi CY tonight around 1opm.


  1. We are praying for you all. Haven we are proud of you for being so brave.
    big hugs

  2. Hi Misty,

    May God bless you and your family during this trying time.

    Team rider,
    Mel Sysing