Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Thursday, May 15, 2008
Thank you!
We really want to thank the Elohistic Ministries of Aberdeen for their help. They sent us a WalMart card and a beautiful card to Haven. A few weeks ago Aunt Dottie contacted the Mayor of Aberdeen and told him of our situation and all about Miss Haven. The mayor’s office reached out and contacted some of the churches and businesses in Aberdeen. We are happy to be part of the community.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
Haven did you receive the package from G-Gram and Candy. If you did pleae let us know. Children right here in Dayton Childrens hospital are doing exactly what you are doing. I saw a little girl the same age as you and a little boy.
ReplyDeleteYou are a brave little girl.
I love you very much.
Candy