Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Tuesday, May 13, 2008
Chemo nights
Well...I'm trying to head off to bed. Haven is still awake. She has had a fever all night and very hot but not over 99.6 so we're hanging out. She's very achy and sweating a lot. I'm not a fan of chemo nights. I've tried to get her to relax but when you're achy you keep wiggling! I'm doing her legs while typing.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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