So I got a letter from JH today and wasn't expecting it. Haven's next MRI is June 3rd - next Tuesday. We are tracking the growth of the tumor that has come back. Luckily this one is at 8am (I guess that's lucky - have to wake up super early) because she can't eat before anesthesia so an earlier time slot is definitely better than the late ones. We should get info from the doctors on Wednesday when she goes in for chemo. Then we have a Thursday chemo as well.
Next week will be a busy week at JH so if we're not around much you know where we are. Kris will take the Wednesday shift and I will take the Thursday shift. She shouldn't get sick until the weekend which is nice because I'm home to help.
I hope Haven handles all of it well. She surprises many of the doctors and nurses with how strong she is and how well she does. I also realized tonight I need to refill all of her medications again. It's just crazy how much medication at home she has to take. We're all so robotic about it - Haven even knows when she's supposed to have it. I've shown her on the clock what the numbers are when she gets it so she reminds us.
Haven has received a lot of great cards and gifts from everyone.
Skye from St. George, UT sent Haven a huge package of Little Mermaid stuff. There was a drinking mug (which she just loves), a mermaid barbie, nails with mermaids on them, a mermaid bowl and a bunch of other stuff.
Grandma Virginia and Grandpa Virginia are sending a $100 grocery card each month to help out. That is so extremely helpful. Healthy food is ridiculously expensive. I can't imagine why Americans are overweight - in order to be able to feed a family you have to buy cheap fattier stuff. Thank you!!!!
Her pediatricians office is constantly sending her stuff. She said she can't wait to go back to see them.
Julie and Joe Whitehair sent Haven a fairy coloring book (ColorWonder - absolutely love it! thank you) and a Target gift card. We really appreciate it!
Clinton School in Michigan sent Haven their class picture and all of them made beautiful cards for her. She's so excited when she gets cards and pictures.
Again thank you everyone - you don't know how happy she is to get anything in the mail.
I will update more through next week while we are in and out of the hospital. Love to all.
M
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Haven; thank you for the card you sent G-Gram. I have been looking at your picture's of Piggy; I think she should be with me. I bet G-Pa Honey will not leave his shed open again. It is very nice of all the people sending you cards; and other things to make you happy. I also like G-Pa Honey's yard did you help Mommy and G-Pa fixing it up so nice? G-Pa Honey has to fix my yard; you tell him that. I do not like to cut grass either.
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