Another super huge thank you to my parents. They have been helping us quite a bit when Grandma Virginia is not able to come out. They will usually take Haven in the late afternoons and help to feed her and play with her so Kris can work and I can get some stuff done. Then we are usually over there all weekend every weekend. Last night my parents came over and my mom gave me $1,000 towards Haven and anything she needs. I AM SO THANKFUL! I have a bank where I put all of Haven’s WalMart cards and any money she receives. This will definitely be a huge help over the next few months as things start getting crazier.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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