Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Monday, May 19, 2008
Memorial Weekend
We're looking forward to a nice and fun weekend - hopefully not filled with rain like last week and weekend. We'll be taking Haven down to see Grandma and Grandpa in Virginia for the weekend. She is really looking forward to going down there and having a tea party. I'm sure I'll have to pack up the car with a billion stuffed animals that are all dressed up for a tea party!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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