So I added this "follow by email" thing over here that you can sign up on instead of guessing when I have updated the blog....it might make things a bit simpler! :)
It is on the right side of the page. I haven't tried it but let me know if there are issues! ;)
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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A short update until tomorrow - as we were admitted to the hospital but luckily my phone has Internet!! Haven did very well through surgery!...

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