Wednesday, February 17, 2010

RARE DISEASE DAY 2010


REMINDER!!!!


DIAGNOSED: NEUROBLASTOMA CANCER AND ROHHAD SYNDROME


Please support RARE DISEASE DAY! This is the highest acknowledgement we get for our children who are born with rare diseases.

ROHHAD only has 50 children world wide with this disease. Yes - that means in the entire big world only 50 kids. This doesn't mean only in the USA! Every country you can think of is included!

To see more beautiful children please visit their site at : RARE DISEASE

Look for this banner on Facebook and become a fan! You can search for World Rare Disease Day.


We'll be telling Haven's story again this year!!! Thank you everyone


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