Saturday, June 23, 2012

Tuesday, June 5, 2012

Pioneer trek weekend

While we did not join as we are not LDS, we do enjoy learning about it.  We saw the "kids" (I put it in quotes because although they are kids some are teens) walking down the street from the church and I immediately had to contact my sister-n-law back in NY to find out what was going on.  It was the coolest thing ever.





We had to stop and wave to all of them.  Such an amazing thing they do to help the kids to understand the history.  We really do love being out here in our mountain area.  :) 



Saturday, June 2, 2012

Chemo day and Baby Boy day

Haven and I actually had doctor appointments on the same day at the same time.  So on the 29th we all spent a little time at hospitals and doctors offices.


Haven had to do her chemo - which will keep her up to date for the summer.  She did amazing this time.  I left her with dad and Rohnin while I went to my appointment.  She does not have to see another doctor until the end of July when she will head back to SLC Primary Childrens to get all her lab work done, not just IGG levels. 


This is the new port access needle they use here.  It has taken Haven a few times to get used to it but this time was a much better access and no blood.


As for the baby boy....I have been suffering severe pregnancy induced carpel tunnel syndrome.  Randomly at any time my arms and hands will begin to burn and go numb.  I can't move them and I can't relieve the pain.  It doesn't matter what position I'm in or what I'm doing.  So I went in to see the doctor and after 2 weeks of about 2 hours of sleep each night I was not in a mood to not get something done about it.  I am now wearing splints on each arm and he gave me some amazing sleeping pills.  Due to the severity of the carpel tunnel he will also be inducing me early so I will stop swelling so bad.  We will find out the exact date and time on Monday morning.  I really wanted June 21 since it is my grandpa's bday but it doesn't seem as though we can make it that long.  But we'll see....we are definitely excited to meet our new little baby boy.  

NAME NOT CHOSEN YET!  We get this all the time...even if we have a name you won't find out until we deliver.......



 

 

Memorial Day - Gunlock State Park

 We had some friends come out from California for a family weekend.  That little spec at the top of the hill is Kayla.....they got to play on some of the red sand dunes at Gunlock State Park.

 Just a few views from Gunlock.


 Dads taking the kids down to do some climbing in the rocks

 Even the dogs came.  Deez is leading with Doug right behind.

Rohnin was not a fan of the red sand on her toes.  She immediately ran to daddy.


Lab work....IVIG

 On May 15th we headed back in to the hospital to get Haven's lab work done to see if we would need more IVIG any time soon.  Her normal IVIG schedule is every 8 weeks.

 She has always done her own flushing of the port and helping with all the needles.

This time was a much better visit and Haven did much better with Jason - her nurse.  We received a call from SLC the next day that Haven was amazingly up from below 100 to over 500 and has maintained it.  Her next scheduled IVIG would be May 29th.


Last Day of School

 The day before the last day of school was the "clean out your desk and get any thing else" from school day.  Haven is so proud of herself for such an amazing year at school.  Even switching schools in the middle of the year.  She received her completion certificate and came home with the biggest smile. 


 The very last day was Hawaiian day.  She was completely decked out with her skirt and flowers...not to mention all the flowers in her hair she got from her uncle Kevin who lives in Hawaii.


Congrats Haven.....it's time for 3rd grade!!




Cool stuff in the desert

We love exploring the desert and some days we just drive and drive to find something cool.....Here are a few photos Haven has taken during some drives....

 One of our favorite cacti plants.  Beautiful pink flowers


 Random goats on the dirt road in to town.

 Another prickly white flower of the desert

 Bones....
 We're not sure what skeletal remains these are...but it was a super cool find.

 Such a beautiful view and I love how the house is so hidden that you aren't missing any of the land.

My favorite plant....just recently found out it was called an Ocotillo plant.  Now I know what to buy!



Haven working on......

practicing with a compound bow.  We were able to get a super deal...with this economy there is one thing you can take advantage of - people getting rid of toys.  So we found an excellent condition compound bow - perfect for her size.  Looks and feels like it wasn't even used.  We added some Hello Kitty gripping tape to it to spice it up.


Check her out...she practiced a few times then bam....she had it down.

 Here she is prepping the bow to shoot the hay bales...of course we have to close the course due to the animal running freely!!!  DEEZ!!!!!


Alright.....now we're ready!!!

She has done amazing at working on her skillz.....I can't believe how fast she picked it up.



Mountain Man Rendezvous - Vejo

Uhhhh yea....what is it?  We'd never heard of it either but sounded like a day of exploring so we were on it!

The Mountain Man Rendezvous is organized by the Rocky Mountain Fur Company and includes a mountain man encampment, food and crafts venders, archery and black powder shoots, hawk and knife throws, atlatl competition, candy cannon shoots, bowling ball cannon, and children’s activities.

We had a lot of fun.  It was located about 5 miles north of us - so a little more up in to the mountains which helped with the weather!

 My girls....ready for the hike

 Map of the area with all the activities and stores

 One of the shooting competition areas



Another view of the shooting area


  Roo and I at one of the stores.  I was about 8 months at this point.  Makes walking up and down a mountain more fun!!!







USPSA National Championships

There is so much to do here.  We just love it.  One weekend we headed down to the Area 1 USPSA National Championships.  I checked out the vendors with the girls while dad watched all the shooting matches.

 Main tent at the event

 Gully Run --- heading down to the match areas

 One of the obstacle areas

 K walked through to check it out and see what they were doing in the competition

 Here you have good guys mixed with bad guys through the scene

Final stage was in a housing situation.  Kicking in doors and busting windows to get to the bad guys.



Tuesday, May 29, 2012

Hanging at Sand Hollow State Park

 Deezy enjoying her Puppacino from Starbucks

 Spending a day at Sand Hollow State Park

 One of Deezy's faves is the red sand

 Look at those ears!  She loves running in this sand

 Go Deezy go!

Another view from the other side. 




ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...