Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Tuesday, March 13, 2012
Rohnin - growing fast
Miss Rohnin is growing fast!!!! She is now almost 11 months - I can't believe her birthday is next month!!! Took her to the doctor today and she is 97% in height at 30 inches and 90% in weight at 22 lbs. First thing her doctor says - "she certainly doesn't have her sister's issues"!! I like that! She is most definitely going to be tall.
Other than having eczema - which seems to be worsened by living in the desert - she is a healthy little bug.
Oh and PS: the lady that gave Rohnin her flu shot and told me that my baby was overweight and I should watch what she eats.......you should stop telling people that. Luckily I'm very knowledgeable of this stuff and it didn't phase me!
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ROHHAD in Ireland
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
2 Cuties! Please tell them that I said hello.
ReplyDeleteWith prayers & best wishes,
Wylene