Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Wednesday, March 21, 2012
Jessie.....she's a superstar!!!
I am a bit late on posting this but I have to say this little girl brings happy tears to my eyes! Her mom friended me on Facebook in 2007 when Haven was first diagnosed. We have been friends and stayed in contact ever since. I'm constantly checking in on her daughter and she is constantly checking in on Haven.
Jessie just had an MRI on March 13th and we're awaiting results. These kids are more amazing than anything I could dream of. Jessie is truly an inspiration and I'm so happy to know them! We love you Jessie and Stana!
You can check out Jessie at Caring Bridge or her Families Against Neuroblastoma (FAN) page!
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
No comments:
Post a Comment