I love Feedjit ---- not because I'm spying on you...well maybe. But it's a great tool to find out where Haven's site is being viewed and how they even came upon it. I am amazed at countries and exactly what they "google" to find her site. Not sure if you have ever used it but it's a great addition to a blog.
Some people google random words and happen upon her site and some are more specific. I can see if they come to her site through facebook, google, yahoo, TV show, or whatever.
Here are a few from today that I just found interesting and am happy people are searching:
1. Someone in Tel Aviv googled "rohhad syndrome IVIG" ---- you can't get more specific than that and in Isreal!
2. New Jersey was searching for "allergic reactions to cherries" --- ended up on Haven's site. That's another person in the world that didn't know about ROHHAD and does now. Even if they only stayed for a minute.
3. Nevsehir was searching "medulla oblongata" --- I don't even know where this is but they landed on Haven's site in an area describing a section of the brain that is affected by ROHHAD!
4. USA searching for "grandma bist" --- well I know this one! :)
5. Buenos Aires searched for "sindrome de ROHHADNET" --- comes across Haven's site.
6. Genoa, Liguri also searched "sindrome di rohhadnet" --- AWESOME
7. Jerusalem, Yerushalayim straight searched "rohhad syndrome"
However, the top search that lands people to Haven's website is a disgusting one - Clostridium Difficile. She obtained this while at 0 immune system in the hospital.
I can even tell where they came from - Facebook, YouTube, Cancerkids.org, or if they type in her site directly.
Again....thank you to all of Haven's fans out there and those yet to become her fan and don't know it!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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