Well.....it's almost time for chemo (8pm) but we have been waiting for the bunny all day. Haven has been hoping for certain things from the bunny tonight and has been wishing a lot, she says. Grandpa B Honey took us all out to dinner at Haven's favorite place - Cracker Barrel. She likes this restaurant because it has a store! :)
Then we went out to Target to get her to walk around for awhile. She had so much fun just browsing we ended up staying at Target for about 2 hours. I have never seen a 5 year old have more fun in the pots and pans section - I was bored out of mind - but she had fun. She taught me all about certain pans and what they are used for. Then she showed me the as seen on TV section - they had the snuggie, the sliders, and the pedi-egg. She really wants a pedi-egg --- why - I have no idea.
But we're getting ready to take the evening dose of medication and then happy dreams of eggs and bunnies!
We hope everyone is having a great Easter weekend. Love to all!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Misty; all in Ohio will be thinking about everyone in Maryland on Easter. I printed one of the pictures of Haven for g-g so she could see how good her eyes looked. She said Haven is very pretty. Gram is having a Ham dinner for anyone that shows up and that is not many anymore. Ernie will be working the egg hunt. Remember those days; I have some great pictures.
ReplyDeleteLove the Easter greetings; all of you have a great day.
i hope haven (and you all) have a wonderful easter :o)
ReplyDelete