While watching her oxygen I am able to watch Haven's heart rate. Now the machine is hooked up perfect and we have excellent readings - nothing is malfunctioning. Haven is laying perfectly still.....
My question to anyone else on Pulse Ox: Haven's heart rate seems skips sometimes. Sometimes it does a double click really fast and sometimes it seems to skip a beat. Does your machine do this? Is something messing up even though all lights are green and no alarms are signaling?
Sometimes it goes...da...da..da..da..da..dada..da..da.........da..da..da..da..dada..da..da..da..da..da..da.
I guess I just have to wait for Cardiology to get back to me on the over night monitor they put on her. I have been reading up on Tachycardia to understand it, as this is what she went to Cardiology for. Usually with ROHHAD a child will develop Bradycardia (slow heart rate) - I have not seen reports on Tachycardia.
Ugggg....I really just want to be able to sleep not stay half conscious!
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
She may be having PVCs or premature ventricular contractions. It's basically an extra heart beat. It's usually not serious but I would tell the Doctor to make sure. Hope I could help.
ReplyDeleteHannah Marie :)
Hi Hannah Marie
ReplyDeleteI'm definitely going to discuss with the doctor. He should have her other monitor by tomorrow and he said he would call me with results once they had them in. I will also meet with her pediatrician who will download all of the latest notes in Haven's file for me. One time last night it did some weird things - like triple beats and stop for a second and then normal and double beat. It probably doesn't help that I can hear it now either. :)
You might want to ask the cardiologist about the issue, if he feels it is not a concern then you may want to ask if it is OK to silence the heart beat part of the machine, it would still alarm if it was too fast or too slow, but you would not have the beep for each beat, it can drive you crazy when you listen to each beat and worry. That is what we do for my son, his heart rate goes from 40's to 180's so it is really all over the place and I would go crazy if I was listening to each beat trying to figure out if it skipping beats, etc. If there is a phone number on the pulse ox machine? That would probably be where you order new probes, we make ours last about a week, sometimes need to retape them with cloth tape. Hope this helps.
ReplyDeleteDawn
I know. Let me know how all works out. I'm sure she'll be fine.
ReplyDeleteHannah :)