Cardiology update

I spoke with our Cardiologist today. A few notes from him:

• She has premature beats in the upper chambers - slight arrhythmia - not concerned with this at this time
  
• Haven's heart beat is a constant fast beat and he was unable to distinguish between her being awake and being asleep
• Around 9:30pm and later in the evening she had gone up to 150 bpm while sleeping
• Around 2pm and 6pm he said she was down to 90 bpm while awake

He will request an annual thoracic echo be done.

Due to her heart not having a real pattern and to continually beat high while sleeping but having variations he has concluded that her problem is more Neurological than Cardiac. He is not concerned of her going in to cardiac arrest or any issues like that. He is recommending Neurology and Pulmonary monitor her closely and that we try to fix her sleep patterns.

We will meet with her Oncologist this Friday and review his notes and discuss where to go next. I am happy she is monitored so close by everyone. We'll definitely see something bad before it happens.

Haven currently sees:

• Oncology
• Pulmonary
• Endocrine
• Cardiology
• Orthopedics

And thanks to Haven's Pediatrician - we are able to keep track of everything and get all of the doctor reports we need every 6 weeks.

She has MRIs to monitor her tumor every 6 months and will continue with Cyclosporin and Rituximab for the next year.

Next appointment is Endocrine on May 4th - we will discuss having her checked again for Cushing's Syndrome and checking her growth and need of growth hormone shots.

Love to all