Cardiology appointment set for April 15th
Pulmonary appointment set for April 16th
Endocrine appointment set for May 4th
Oncology --- ha ha ha....we see them all the time
NEW EMAIL: haveyroo@gmail.com
I had to switch emails due to my numerous offshore accounts and lotteries I've won in the past few months since having my ATM card stolen. Please give me a few days --- I can't even figure out how to add a contact to my address book! :)
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Haven's appointments look a bit similar to Joshuas... he has
ReplyDeleteEndocrine... April 15
Surgeon (for pacer)... April 16
then we need to schedule Pulmonary... in May