I have just been informed that a cousin of mine passed away last night from cancer. He only recently found out. I want to wish all of Pete’s family lots of love and our thoughts are with you. Aunt Goo – I miss you and hope to see you soon. Gram/Candy – please be careful on your travels to Tennessee tomorrow. Give you a call tonight. I’d head down there but I can’t leave Haven right now with how she’s been feeling.
Love you too all…..talk soon. Miss ya!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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