Spoke with Haven’s doctor regarding the MRI.
Bad News: Tumor is still present. At same location as original tumor in February.
Good News: It has not grown or changed shape since starting chemo.
Haven had surgery Feb. 1 and didn’t start chemo until April 8th. Beginning of March we had an MRI and it showed everything was clear and surgery removed entire tumor. Sometime between March and April her tumor started growing back. It’s around the Aorta and Vena Cava vessels again and up against the spine. The chemo treatment she is on for the next year is NOT for the cancer, it is in fact for the immune system and brain, however, it has seemed to have stopped or slowed the growth of the tumor. So again, for now we will not do anything with the tumor and will continue with her chemo treatments.
We will be meeting with Haven’s doctor on June 16 for an overview of everything so far, all of her counts and what they mean, where she is at in progress, and what the future will bring. We will be discussing the future of the tumor. My fear is that this takes control again and we’re at the 1st stage and this entire year did nothing.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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