Wow…how things can change so fast on this stuff. I gave Haven some breakfast, had her changed and relaxed when I left for work this morning. By 10am I got a text asking which of my soaps does Haven use in the shower. Well…….that means something is happening. I call and call – no answer. Finally another text. Haven has been super sick and it’s coming from both ends. She’s had a couple showers and is now sleeping. She has refused to eat or drink all day. I can’t wait to get home to see her.
Oh and I just found out that there is a recall on tomatoes. Eating some raw red tomatoes has left some people with samonella poisoning. I have Kris checking it out because Haven eats tomatoes like apples.
EDIT: We had 5 showers before 7pm last night - lots of Zofran to help with the sickness. She is doing much better today and the heat has slowly started to subside.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Mist; you and Havey have been through so much. The both of you are on my mind everyday. I also eat tomatoes in fact I was eating a sandwich with a tomato on it when the news indicated they were being removed from shelves. I hate to hear the tumor is still there:(
ReplyDeleteI have been having horrible a time sleeping with everything that is happening. Tell Havey I love her and try to be as brave as she can.
Everyone in Ohio are thinking about all of you.
Love;
c.