Saturday, October 10, 2009

Photos never posted

I found some photos that we had taken but never posted.

Flushing the Hickman Line before the removal


Tubey - or the old Hickman Line - after being removed from Haven's chest


Building stuff with her dad. Haven loves to work with the tools and help dad build things



Haven's Prayer Blanket from Barbara in California



Haven's zodiac quilt from Jackie Bennett and Kim Lewis with Love Quilts to Make a Child Smile



Haven in clinic with Bongo her monkey
Posted by at
Labels: ,

1 comment:

  1. AnonymousJanuary 13, 2011 at 3:58 AM

    Havey I enjoyed the story on OWN about you strugles with ROHAD I wish it could have been an hour there was so much to tell.
    I was surprised to see you at the end; great job and you looked beautiful.
    A Candy

    ReplyDelete

Subscribe to: Post Comments (Atom)

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...

  • ROHHAD 15 Years Later
    Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
  • ROHHAD in Ireland
     I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...