My sister is currently in surgery as I type. I will update everyone as soon as I speak with her husband.
Since I like to ramble a lot I'm going to start putting it in to my blog. This is where you can read up on my personal stuff or family stuff. My blog is HERE. I have felt a bit censored and confined and believe writing in my own blog will help.
I have lots of updates on Miss Haven as well. I will also be updating her friends section this weekend.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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