Here is a couple of pictures of Haven signing her own form!! She's so
awesome!!
--misty
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
She has great handwriting! Go Haven!
ReplyDeleteI love the headband.
I didn't get a chance to send her something before you all moved to the medical housing. I will email you again for a new address. I have a puzzle for her!