Sleep Study : August 15th
Surgery: August 24th at 9:15 AM
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
Hello, Misty,
ReplyDeletePraying for Haven during the upcoming sleep study and the surgery.
Please say hello to her from me and tell her that I'm sending her bunches of hugs.
((((((((Bunches of Hugs))))))))
May God continue to strengthen all of you.
With caring prayers,
Wylene