Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Saturday, July 27, 2013
Reagann, ROHHAD, and Victoria Justice
Our friend Reagann is doing remarkably well. Last Friday she was able to go to a Victoria Justice concert and got back stage passes to meet her. She was first in line. What an amazing day! Haven was so excited for Reagann. She loves Victoria Justice.
Reagann had a sleep study over the weekend we are just waiting for her results - which having been at that facility a few times it will take a week or so to get anything back.
Good stuff Reagann.....loving the good news. Always thinking of you
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ROHHAD in Ireland
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