ROHHAD Mystery Diagnosis
if you click this link you can see Haven's TV show we did on Mystery Diagnosis about ROHHAD Syndrome in 2010. I was a few months pregnant with our second daughter at the time....we did 15 hour day shooting at the hospital, our house, and in a studio.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
No comments:
Post a Comment