Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Wednesday, July 24, 2013
Hope Kids
We're so happy our friends told us about this great organization that helps children with cancer or other life-threatening diseases. We have met so many people now and have enjoyed many great times at the events for the kids. It's great because Rohnin can go to. We just love it.
If you are looking to donate for a good cause this is a great one. We definitely use it and Haven is opening up. She has even met some kids at a christian church near our house that go here and they have invited her to come to church with them. It's so great.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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