Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Saturday, January 22, 2011
Surprise Visit!
On Wednesday Miss Lauren came to visit Haven. We haven't seen Lauren since she moved to Hawaii last August. So it was a very nice surprise for Haven. She didn't know Lauren was coming over until after school (when Lauren was on her way). She was nervously excited. She saved all her homework to do with Lauren and they read three books together.
Then tonight (Saturday) Lauren came back to see Haven - after helping her mom's goat give birth to three babies. They got to read another book together and hang out. Haven was very sad when Lauren had to leave. But we're happy to hear that Lauren will be back this summer to hang out!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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