Tonight is the night!!!! Haven's episode of Mystery Diagnosis will air at 8pm EST.....to find out what channel it's on in your area please look at the OWN web site and type in your zip code!
Well we're inching up to our goal!!!! Help us help Hopkins reach their goal of $20,000!!! Click the above picture to donate!!!!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child&...
Wow, Great show! Haven was adorable, I got a little teary at her interview.... So honored to have been a small part of your story... Congratulations, Laura and "Bumble".
ReplyDeleteI know I saw four segments of this parts 3&4 I cannot find. Great show; most of this info I already knew about being a family member. I became a little emotional with Misty emotion. It was a great show and hope it will help other families dealing with the same thing. Haven you were great and a real trooper.
ReplyDeleteAunt Candy