Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
I'm hoping there will be some way to see it.So funny the way her hair went from blonde and straight to dark and curly.
ReplyDeleteGlad you caught that it was on too! I look occasionally. I noticed Wednesday on OWN is MD day. But they NEVER show your episode! Until this past week! I'll keep my eye open and if I see it again, I'll email you! Hope you all are doing well. I was just going through our blog and found a comment you had left in February! Sorry we missed it:( We too were so happy to meet you all, hoping the re-run of that episode reaches more people!
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